3News » Home

Gender and conjoined twins - the same but different

Thu, 22 Apr 2010 9:32a.m.

I'm bored with the Icelandic volcano whose name no one can pronounce. I'm already over the 2011 Rugby World Cup. And the only thing that Anzac Day means to me is that my father is one year older.

So last night I watched a documentary about Trishna and Krishna, the orphaned Bangladeshi conjoined twins who were separated in Melbourne in November last year. The surgery took 32 hours and was performed when the girls were aged two years and 11 months.

It was a compelling watch. Lots of tears, swells of dramatic music, gory surgery scenes and doctors congratulating themselves on "a once-in-a-lifetime operation". A medical miracle, it seems.

Then why do I feel so luke warm about it all?

Even as I write I'm not sure where my lack of enthusiasm stems from, but I think it has something to do with people who opt for gender reassignment. Let me try to explain.

There was an assumption before the girls' final operation that separation was the only option, because their conjunction was an aberration. Even though the surgeries leading up to the final one were traumatic and life threatening. Even though they were learning to sit up and operate as a functional unit. 

Everyone including their adoptive mother wanted them to be normal and that was not questioned.

Contrast this with someone wanting surgery to change gender and you get the opposite reaction entirely. Their desire to change is the aberration and they are encouraged, often compelled, to see their current form as normal, even if it seems wrong to them and causes distress. 

Am I alone in noticing a contradiction in logic? Has anyone else wondered what would happen if the assumptions were switched?

Imagine if conjoined twins were viewed as an unusual but natural – not to mention interesting – example of diversity. Awkward for sure, especially in the sisters' case, being joined at the head. But they wouldn't have been the first. And who are we, anyway, to risk one if not two lives arguing with Mother Nature?

Then imagine if feeling that you were living in a body wrongly gendered was seen as totally unacceptable and causing distress beyond reasonable necessity. Surgery in this instance is not life threatening, so why wouldn't it be treated as routinely cosmetic?

You may be thinking what I'm suggesting is odd, even outrageous. But I'm not trying to be right. I'm just considering another stance in order to explore deeper the beliefs and assumptions that govern our collective behaviour.

Essentially that's what Jacque Fresco did in his Venus Project lecture last week. He questioned society's values, assumptions, beliefs, even language. Why do we get upset about swear words, when we don't even mean what the words mean (bullshit has nothing to do with shit from bulls)? Laws are made when humans don't know how to fix a problem. Politicians were relevant 100 years ago, but now they do what machines could do more efficiently.

This kind of thinking has changed what I do in my work on a day to day basis. I used to run training workshops; now I find myself mainly facilitating exploratory conversations. I can't honestly say to a client, "I know exactly what your staff need to know about diversity," because what they need to know is changing so quickly. All people really need to know now is how to work out what changed since they left work last night.

And that may be as simple or complex as a conversation about what people who change their gender have in common with conjoined twins.

 

Until 2008 Philip Patston identified as gay, disabled and vegetarian. These days he prefers to think of himself as having a unique experience. A social entrepreneur and change consultant, with fifteen years’ experience as an award-winning professional comedian, he aims to promote a new, more useful understanding of diversity. He runs Diversity New Zealand in his spare time (www.diversitynz.com).

 

You can keep in touch with Philip Patston via his social media sites:

 

facebook.com/philippatston

 

twitter.com/philippatston

 

Please vote for this blog in the NetGuide Web Awards.

Philip Patston's Entries

Comments [9]

Craig
28 Apr 2010 06:20p.m.

On the one hand, I certainly agree with you about morphological diversity. Alice Domurat Dreger has done some excellent work on both the intersexed surgical interference/intervention debate and this particular issue. If the conjoined morphology isn't life-threatening, then perhaps we do need to be more tolerant about the diversity and beauty of human anatomies. Sadly, in some cases it is.

And what does this have to do with Deafness? Being Deaf is an anatomical variation. It's bad enough that oralist assimilationism prevailed in the nineteenth century and tried to suppress sign, the 'indigenous' language/s of Deaf communities...

Mike B
25 Apr 2010 06:52a.m.

No Berry Binnie I did not miss the point I just find it irrelevant.
His scenario of gender reassignment was valid but he lost me when he tried to imply that being born deaf or with Down syndrome could be a good thing and enhance society.
A child does not need to be deaf to learn NZSL and a parent who lets this happen when they could prevent it needs their head read.
And my point about ANZAC day is that all this pointless philosophising would not be happening if not for the sacrifices of those old soldiers who fought to create a better world where diversity could be embraced and debated.
As for ANZAC day being a celebration of violence as an ex soldier and someone who has seen the results of war and has sat down and talked with those old soldiers I can tell you it is the complete opposite.
It is a celebration of sacrifice and also a time to morn and hope that it may never happen again.

Berry Binnie
24 Apr 2010 03:59p.m.

Mike B. I think you have missed the point James and Phillip are making.

Why does one mode of communication, way of being in the world have more perceived value, velidity than another? It's an interesting discussion, the idea of embracing NZSL over a cochlear implant. One most relevant to deaf culture at the end of the day. Both are unique communication modes. Is one more valid because it is more alligned with the aural processing of spoken language? I have been lucky enough to learn NZSL Level One as a person who hears. It's a wonderful, creative and vibrant language. Really good fun to learn!

Personally I'm not sure about ANZAC Day because it feels like a celebration of violence. Anything Khaki sends me into an escapist trance.

Mike B
24 Apr 2010 09:39a.m.

James Murray. Your argument about deaf children would hold more weight if the parents who refused cochlear implants also refused government aid for themselves and their children. That also applies for the Down syndrome baby, would you want to be born with Down syndrome if a doctor could have prevented it?
Philip Patston. You say Anzac day means nothing to you, if it wasn’t for the old diggers in WW2 you would have been gassed a long time ago or be speaking German and still in the closet.

heather
23 Apr 2010 12:36p.m.

thanks Philip

Philip
22 Apr 2010 08:15p.m.

James – your points are extremely pertinent - these are the political issues of disability – or as I prefer, "functional diversity" – that society seems reticent to really address. They are a perfect example of a complex conversation about diversity and technology, in which humanity has yet to engage.

Philip
22 Apr 2010 07:16p.m.

Hi Heather I asked Google and found: "Conjoined twins are genetically identical, and are, therefore, always the same sex. They develop from the same fertilized egg, and they share the same amniotic cavity and placenta." http://www.umm.edu/conjoined_twins/facts.htm

Heather
22 Apr 2010 02:33p.m.

I too watched the programme and I had the thought - are there cases of male/female cojoined twins or are they always the same sex?

James Murray
22 Apr 2010 02:05p.m.

Hi Phillip - I think you make an interesting point about changing someone original genetic make-up to make them what we see as a normal person. For instance - what would most people do if they were told their unborn child has down syndrome but they could take a chromosone pill to avoid this occuring. Down syndrome would be eradicated but we would also lose variations on the human condition that teach us a lot about love and life. The same could be said about the debate around cochlear implants and their impact on sign language. Should a child have a right to hear if they are suitable for an implant or should their community or parents have a right to be able to communicate perfectly with that child through sign. (This issue is obviously complicated by the fact that large numbers of deaf children are born to hearing parents - where in my view a cochlear implant, if workable, is certainly necessary so the family can communicate fully). At some point will we draw a line at our increasing ability to create "perfect" people? Or will we say that we are actually ok with what we have already? The world would certainly be less interesting if we all had the same bodies! Chief Editor 3news.co.nz

Post a comment

Name:
Email: (Won't be published)
Comment:


3News Video 3News Audio