Mum worried about son's fertility
Fri, 04 Jan 2013 6:03p.m.
By Melissa Davies
An Auckland born woman who lost a British court battle to stop her son having radiotherapy says she's launched an appeal.
Neon Roberts' recently had a cancerous brain tumour removed and doctors say his life is at risk if he doesn't start treatment next week. But his mother Sally Roberts says there's not enough proof that radiotherapy is the best option.
Ms Roberts is fighting to regain her decision-making authority as a mother.
She lost that right just before Christmas when a British judge ruled against her and cleared the way for doctors to start planning radiotherapy treatment for her son.
The Kiwi ex-pat says a human rights lawyer is now appealing that decision.
“I've had so much support and I wouldn't be sitting here now or even considering an appeal if I didn't think I was doing the right thing,” Ms Roberts says.
But Ms Roberts does not have the support of her estranged husband, Neon's father. Their relationship broke down because of her ongoing battle against Neon's doctors.
“It should be my choice because I'm the one who is going to be caring for Neon.”
But Neon's father Ben is currently caring for his son.
“I have always been Neon's main carer so why Ben has stepped up now is beyond me,” Ms Roberts says.
She says she's especially concerned that radiotherapy would affect Neon's fertility, meaning no grandchildren. She says there are other treatments available in Germany and China which may be less invasive.
One of those is called hyperthermia.
“Hyperthermia, not hypothermia. It's heating. It helps stimulate the body into healing and it actually works alongside chemotherapy and radiotherapy at the moment in these countries to lessen the side effects.”
Ms Roberts must find a medical professional to back up her case in court and she says there's still enough time to do that.
She admits she may not be seeing how ill her son is.
“Yes, you could say that but I would like the opportunity to do all these other treatments for him.”
As the legal battle continues, the little boy at the centre of it all still has no idea about the controversy that surrounds him.
Neon's radiotherapy treatment is due to begin next week. If it's delayed any further doctors say his chance of survival will diminish rapidly.
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9/01/2013 8:05:41 a.m.
hmmmmmmm the life of my child vs 'potential' grandchildren... bit of a no brainer in my book! This is considering if course that said child actually WANTS children of their own. This poor wee bugger may end up so distrusting of his parent that he has a vasectomy at the first possible opportunity to prevent himself becoming like his mother!
8/01/2013 8:58:47 a.m.
Does she want in to die or something? I get she wants to find what other treatments might work but it doesn't mean you can try radiotherapy instead of court battles while your son gets worse and survival rate gets less and less. If this was anyone of my children there is no way i would do what she is doing, i would get instant treatment and research at the same time.
5/01/2013 6:56:13 p.m.
@ Sarah. You might like to check on Dr Stanislaw Burzynski, Houston, Texas. He's mentioned on various scam/quackwatch sites. At best, his treatment remains controversial.
5/01/2013 5:46:22 p.m.
To @ S : and others . She was trying to get all the information together and get him optimal international treatment. The British court stopped her and are insisting for better or worse on the traditional treatment offered in Britain. The father also was keen to explore over seas treatments, but we don't hear that do we.
5/01/2013 10:38:13 a.m.
Typical Aucklander - head in her pants.
5/01/2013 10:35:21 a.m.
If there are other options and this is a matter of life and death, why hasn't she already tried them for goodness sake, what is she waiting for ???
5/01/2013 8:10:23 a.m.
So what about the human rights of the son.They don't count i guess.Having watched this woman on the news i see she loves all the attention and will keep this going to milk it.
4/01/2013 11:40:17 p.m.
Fine, appeal it you dumb slag. You won't get grandkids if he dies either, which by the way is a selfish reason to want to risk your son dying. There are not enough studies to support that Hyperthermia will work. He needs help NOW.
4/01/2013 10:13:08 p.m.
Are you serious lady. I hav four kids and my prime concern would be save them. Not can they hav kids in 20 years. You have no right to make the choice of life over fertility
4/01/2013 9:58:44 p.m.
ummm...'Worried about her son's fertility'?? This should be the least of her worries....! - like the fact he is likely to die without treatment
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