School girl gets rare brain condition

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School girl gets rare brain condition

3News NZ

For the last 39 days, Grace has been in Starship hospital, in and out of the high dependency unit

For the last 39 days, Grace has been in Starship hospital, in and out of the high dependency unit

At the beginning of May, Carterton school girl Grace Yeats was a lively schoolgirl; good at sport, she danced, she played the piano.

But for the last 39 days, Grace has been in Starship Hospital, in and out of the high dependency unit.

Almost overnight, she was struck down with a rare brain condition that has doctors baffled.

It is a traumatic time for Grace's family but they are enveloped by a close, caring group of friends back home in the Wairarapa.

Watch the report from Whena Owen.

To contribute to Grace’s cause:

Grace Yeats Trust

Westpac Branch
03 0687 0508897 000

Post cheques to:

Grace Yeats Trust
Westpac Bank
Po box 47
Carterton 5713

Email: bringhomegrace@gmail.com

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Comments

31/08/2012 8:56:30 p.m.

Dawood Latif wrote:

After seeing the news on TV3. John you do a great job in bring a real face of humanity into our homes. Can I please suggest that the family or Campbell live contact Dr. Ben Carson - John Hopkins Hospital and he as http://search.mywebsearch.com Dr. Benjamin Carson, Professor of Neurosurgery, Oncology, Plastic Surgery and Pediatrics. Dr. Carson will help if he can.

31/08/2012 7:46:44 p.m.

V Sullivan wrote:

Hi Tracy, My daughter and I have just wanted Grace on Campbell Live. She is now 8.5yrs old and was also diagnosed with ADEM when she was 3.5yr (the youngest case they had seen). The part of her brain that was effected was the Optic Nerves and was blind for 6 months. Now 100% better. However I know what you are going through. We live in AKL if there is anything we can do - visit bring you a coffee please contact me.

31/08/2012 7:31:38 p.m.

Sue Hughes wrote:

What a beautiful girl it is so sad a parents worst nightmare May the familiy get their lovely Grace back real soon .She will recover she must . Love and Prayers to Grace and her loving family.From Sue ,Palmy North

31/08/2012 9:45:28 a.m.

Matthew Smith wrote:

The comment from Richard Bartholemew is sadly typical of a certain type of doctor who is over-eager to diagnose "hysteria". There is a related disease to ADEM called myalgic encephalomyelitis (ME) and this diagnosis is thrown at them a lot. They suffer a lot of cruelty, even children who are very sick and in a lot of pain. There was a girl here in the UK called Lynn Gilderdale, who suffered from one of the most severe cases. She was bedridden for 16 years until her suicide, aged 31, in 2008. They found clear evidence of endocrine abnormalities during her life, and of spinal cord inflammation after she died. But many doctors treated her as a hysteric and she suffered terribly at their hands. I do hope nobody like this get their hands on poor Grace.

17/07/2012 3:54:02 p.m.

tarnz wrote:

We have recently heard of young Grace and her whanau's ongoing battle with this rare brain condition. As we are a family store owned by myself (Tarn) and my husband Rusty, we sympathise with the Yeats whanau as we ourselves have three young children of similar age to Grace. Nikita 11 years Ashanti 9 years and Noah our youngest at 5 years of age. To think of such a terrifying condition striking down either one of our children is terrifying and yet Graces family are leaving this right now as you read our email.

We at Pitstop Masterton would like to help out financially by donating $10 from every economy vehicle service (from $139) $15 for a extensive service (from $189) and $20 per service for our elite, 4x4 and deisel service which costs from $279

If we book in 8 vehicles a day (based on economy service) thats $80 per day x 5 days a week = $400 per week
and if we book in for elite, 4x4 or diesel thats $160 per day x 5 days a week = $800

and if we run through all of August, well the maths is easy to work out.

To make this a success we would be looking at radio advertising, facebook, newspapers and where and what ever we can generate press to make this a success. We would not put a end date on this promotion and will run it till we get the Yeats whanau the answers they are looking for
Stay strong Kia Kaha. Tarn, Rusty and Whanau at Pitstop Masterton Wairarapa

3/07/2012 4:02:05 p.m.

Meredith Gillies wrote:

Hi there, to my old neighbours I heard of your news here on the Gold Coast. Very very sad to hear your news and we would like to wish your whanau all the best and we know that Grace will be surrounded by a wonderful family and friends. Oh how your children have all grown up and I bet they make you both proud. Kia Kaha Meredith, Chris and Kids xxxxx

3/07/2012 11:39:52 a.m.

Trish Wilkinson wrote:

Hi Tracy
We here at the PHO are organising a quiz night and have included Graces's Trust to benefit from the funds raised.The quiz is on Monday 30 July at the cozzy club mstn. I am distributing the flyers today. Best wishes to you and your family. Your fellow Nurses are thinking of you.

30/06/2012 9:35:14 a.m.

Robert Bartholomew wrote:

Hi Tracy. Thank you for your clarifying comments and for taking my remarks in the spirit that they were intended: to help get the correct diagnosis so that your daughter gets better. While MRIs need to be interpreted by human beings, if there is unambiguous evidence of an inflamation of the brain, then I would rule out conversion disorder. My thoughts and prayers go out to you and your family at this challenging time.

29/06/2012 9:00:29 p.m.

Danilo Acevedo Mena wrote:

I saw this case here from Chile because I'm a good friend of one of this Grace's cousins. I'll send you all of my good vibes and I'll pray for her. Anything you need like sharing the case to more people who would help, just let me know. I hope to hear some good news soon =)

29/06/2012 2:19:11 p.m.

Michelle Grant wrote:

Hi Tracey, I just wanted to say we are all thinking of you here in Carterton. You have been so great for us, been there with both my boys the last few years. Take care, of you and your family, and we hope to hear some good news soon.